Welcome to Part 2 of our 5-part blog series, ‘Navigating Diagnosis to Recovery,’ featuring insights from Mrs. Jill McNeely, a retired breast nurse navigator with years of experience guiding patients through the challenges of breast cancer. In this blog, dive into the period between diagnosis and treatment, empowering you with knowledge on what to expect, how to prepare, and most importantly, how to take control during this overwhelming time.
The waiting period between diagnosis and treatment can often feel like the most challenging part of your journey. This time can feel overwhelming and leave you uncertainty with what to do next. Jill’s advice in this episode gives encouraging guidance and practical steps on how to navigate this period with strength and clarity.
Here are some next steps to consider if you are newly diagnosed:
- Take a deep breath - You have time to make choices. It’s okay to take a moment to process everything.
- Limit your online research - While it’s important to be informed, avoid excessive searching. If a website or source doesn’t feel right, get out of it. Lean on your nurse navigator and breast care team for questions and support.
- Surround yourself with positive people - Whether you choose to share your diagnosis or not, having emotional support is vital. If you lack support, reach out to your nurse navigator, care team, or local support groups.
- Check your insurance coverage - Understanding what is covered can help alleviate some of the stress during this time.
- Fill out FMLA papers - Even if you think you won’t need them, it’s wise to have this paperwork ready for your employer.
- Don’t hesitate to get a second opinion - It’s perfectly okay to seek additional perspectives on your treatment options.
- Consider genetic counseling - If you feel it’s necessary, this can provide valuable insights for you and your family.
- Get fitted for a post-surgical bra - A proper fit can greatly enhance your comfort post-surgery. Visit a local mastectomy boutique to find the right bra and let them check your insurance for coverage options.
- Apply for financial assistance - There are programs available to help patients manage costs during treatment.
- Don’t give up what brings you joy - Remember, your diagnosis does not define you. Continue to engage in activities that make you happy.
- If you are seeking online support groups, here are some that Jill recommends:
- Living Beyond Breast Cancer
- Susan G. Komen
- Choose Hope
- American Cancer Society
- National Cancer Institute
- Johns Hopkins Breast Center
- CaringBridge – An excellent resource for updating loved ones on your treatment journey without needing to repeat your story multiple times.
- If you need assistance on how to check your insurance coverage as a newly diagnosed breast cancer patient, visit this link: https://youngsurvival.org/health-insurance
- If you need assistance with the Family & Medical Leave Act (FMLA) or the eligibility requirements/paperwork you need, visit this link: https://www.cancer.org/cancer/financial-insurance-matters/health-insurance-laws/family-and-medical-leave-act.html
- If you want to learn more about genetic counseling and why it could be a good option for you, visit this link: https://www.cancer.org/cancer/types/breast-cancer/risk-and-prevention/genetic-testing.html
- If you are seeking financial assistance, here are some resources that you can learn more about:
-
Cancer Care Co-Payment Assistance Foundation
Phone: 866-55-COPAY (26729)
Website: https://www.cancercare.org/copayfoundation -
Susan G. Komen Financial Assistance Program
Website: https://www.komen.org/support-resources/financial-assistance/ -
Patient Advocate Foundation Co-Pay Relief Program
Phone: 866-512-3861
Website: https://www.patientadvocate.org/connect-with-services/copay-relief/ -
Patient Access Network Foundation
Phone: 866-316-7263
Website: https://www.panfoundation.org/ -
Cancer Financial Assistance Coalition (CFAC)
Website: https://www.cancerfac.org/ -
Pay It Forward Fund (for women with breast cancer)
Website: https://payitforwardfund.net/
For those interested, more information about Three Strands Recovery Wear, including retail locations, online purchasing options, and ambassador opportunities, can be found on their website at threestrandsrecoverywear.com. Questions can also be directed to their email at info@threestrandsrecoverywear.com. If you are interested in purchasing the Resilience Bra please use our store locator to find the nearest Resilience Bra to you or find it online here for 15% off your first purchase.
It's important to note that while the series provides valuable insights and personal experiences, it is not a substitute for professional medical advice, diagnosis, or treatment. Viewers are encouraged to consult their physicians or healthcare providers regarding any medical concerns.